South African Noonan's Syndrome Support Group

Area: Johannesburg, Gauteng
Postal Address: PO Box 64216, Highlands North, 2037, South Africa
Phone: +27 (0)11 609 1742
Fax: +27 (0)11 609 1742
Cell: +27 (0)82 456 0233
After Hours Number: +27 (0)82 456 0233
Contact Person: Mrs Lucy Cinnamond

Noonan syndrome is a condition that can affect the heart, growth, and mental and physical development. It is generally recognized by a heart valve defect present at birth, short stature, droopy and wide set eyes, and low set ears. Features that are often present include low hairline in the neck region, striking blue or grey eyes, curly hair, and chest deformities. Affected children may have behavioral and learning problems. The incidence is between 1 in 1000 to 2500 children.

The Noonan Syndrome Support Group (NSSG) was founded in 1996 by Wanda Robinson in the USA. To visit their site click on .

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